AIDAN (7) 2nd Diagnosis In South Africa
Aidan was diagnosed at 18 months with a very rare genetic disorder called Costello Syndrome. So rare he is the 2nd diagnosis in SA and only 4 – 500 people have it world-wide.
He needs abdominal scans every 3 months to screen for cancerous tumours, and heart scans as he has a thickened left ventrical wall. He was born with Culcaneo Vulgus Feet which were corrected surgically in May 2015, he also needed surgery on his spine to release a tethered cord in July 2016, and his latest op (his 11th general anaesthetic) was 3 months later to remove growths protruding into his eyes ... amongst other challenges - but today, we take one step at a time.
“Raising Aidan” MICROWAVE Cake and Cup Cake Mix
Aidan was diagnosed on 30
march 2011 with a very rare
generic disorder called Costello Syndrome. So rare he
is the 2nd diagnosis
in SA and only
2 - 300 people
have it world-wide.
Help give Aidan the best chance in life by becoming a customer and Raving Fan in order to raise the almost R40 000 needed per month to cover expenses that are not covered by his medical aid – e.g. his special schooling, medications, scans etc.
Aidan’s Mom Melissa offers:
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Birthday / Gender Reveal and ANY Themed Cakes, Cupcakes and Biscuits directly from Melissa on 0836788819. (Johannesburg)